PEI ACL FAMILY NETWORK:
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What a lovely article from Suzanne Perryman. Thanks for sharing what many of us feel about the scope of being a special needs parent. Read through the points, I am sure many will ring true. Well done, heart felt, and touching.
In her post “6 Secrets Special Needs Moms Know but Won’t Tell You,” Suzanne Perryman, mom to a daughter with special needs, shares some of the less talked-about aspects of special needs parenting. She writes with honesty and personal insight about the worries, struggles and profound love you only understand if you’ve been there, too.
We thought a lot of you might have secrets of your own, so we asked our readers on Facebook to share one secret about parenting a child with special needs. Here is what we learned.
8. “Don’t let anyone ever tell you that you are not supposed to grieve. Grieve for as long as it takes. Day by day, week by week and then month by month, the days get better.” — Kelly Anne Kuziw Lautrup
10. “It’s a lot harder than it looks. It infiltrates every crevice of your life and affects every minute of every hour of every day. It’s right there when you wake up in the morning and doesn’t stop challenging you until bedtime (and doesn’t stop even then).” — Hilah Swidler Marca
21. “Parenting for special needs and ‘typical’ kids is like a tightrope walk without a net. The only difference is that special needs parents know exactly how close the ground is. That perspective helps us appreciate everything so much more.” — Amy Kenny
22. “You will become an army for your child.” — Stacey Weber
31. “You are dealing with a living situation far beyond what an average person deals with. There are services that can help give you a break. Never be ashamed to seek professional help.” — Stacey Rushing
32. “I cry. All the time. Joy, frustration, exhaustion, successes, good days, bad days — I cry for all of them.” — Lauren Swick Jordan
33. “Some things may never get better, but your ability to deal with that problem will improve.” — Wayne Kirk
34. “You don’t have to be a perfect parent. Just love your child, that’s plenty perfect enough.” — Annemarie Gibbs
35. “You’re now in a secret world. You’ll see things you never imagined: ignorance, rudeness and discrimination. But you’ll also witness so many everyday miracles, and you’ll know it. You won’t think a milestone is just a milestone, you’ll know it’s a miracle and be present in that moment. You’ll treasure things most wouldn’t think twice about. You’ll become an advocate, an educator, a specialist and a therapist, but most of all, you’ll be a mom to the most wonderful child.” — Geraldine Renton