Monday, November 23, 2015

Some tips for surviving the upcoming holiday season.


AHH the holiday season...can bring that twinge of anxiety to us all. We will be posting a number of articles, resources to the blog over the next 6 weeks, that may help get us all through the upcoming 'disturbance in our kids force' that comes with all that the season brings. Juggling extra performances, lights, smells, dinners, family get togethers, those trips to the malls & grocery stores, we sometimes can't avoid. As I look for information to help, and think about what supports we have put into place over the years that have been successful for Joshua, and the family as a whole, there is often a reoccurring theme. There are links below to a number of good articles. Please remember to do what you need to do for your family. Often times, we need to step back, and create for our family what works over the holidays. We have slowly started to decorate for the holidays, taking the lead from Joshua as to what he is ready for. We 'up' his visual supports, reinforce activities with social stories and post a weekly chart on the fridge as to who is where, what day, when and for how long. As well as sensory feedback opportunities, sometimes, a suggestion for a 'walk about' outside, is enough, as he skips out the door and all around the yard for half hour, brings the body back into focus.  On a whole these seem to help decrease his anxiety & need to know that at the end of the busy day, we are all together at home. I know I don't need to remind you, but watch their behaviours, or their language, those are often indicators of needing support. When you see or hear increase in repetitive behaviours, increase in stims, echolalic language- a little extra support is needed. 
____________________________________________________________________________

Here's a few tips that I found

A few minor tweaks to holiday rituals can go a long way
 • Ease your child into the big family gatherings by introducing him or her to one or two relatives at a time (instead of everybody all at once). Some parents also send family members a letter beforehand with some suggestions about how to make the child feel most comfortable
• Rely upon an old tradition: the kids table. Set up a table for the kids, so your child does not have to grapple with the stress of sitting with the grown-ups, yet still feels like part of something special.
 • Set up a safe place in the house for your child to go if he or she just wants to be alone.
• If you have a tree during Christmas, decorate it in such a way that satisfies your kid’s curiosity. In many cases, this might mean utilizing small stuffed animals instead of ornaments. In other cases, it might mean nothing but plain white lights and strands of cranberries and/or popcorn.
 • Holidays are about the kids; it’s a successful holiday if the kids are happy.
• When you feel frustrations welling up, take a step back and focus on what you’re doing.
 • Allow yourself to be frustrated and anxious; there’s no shame in that.
• Remind yourself that it’s OK to let go of certain traditions that just won’t work… for now.
• Remember what your child’s “currency” is and use that to interact with him or her.
•At holiday time, the definition of a family meal should be flexible. “If your child doesn’t want to eat with everybody else, that needs to be OK; if the child needs to take a break, let him go,”

____________________________________________________________________________

What to do with holiday sensory overload?

Stick with the routine
We try to keep up with the tidying and usual chores as much as possible. That’s part of the routine and somehow putting away their laundry or clearing the dishwasher is calming and centering.
Remind of the rules
We constantly review the rules. Rules are a lifeline to children who require routine and predictability and since they are young and easily overwhelmed, they need constant reminders that the rules don’t change when there are sparkly trees in the stores.
We specifically review what things they may and may not touch at home and when we visit. They need sensory input so when we visit someone I go around the room with them, look at everything and remind them that they are not to touch, before I start visiting.
Be prepared
We are intentional about employing coping mechanisms that we know work. I will keep a chew necklace in my purse for Mouse and get some new Silly Putty for Buggle.
We plan for overload and meltdowns. We leave somewhere if we need to. If we can’t leave for some reason then we employ coping mechanisms including holding and positive touch.
Get extra rest
We plan for extra alone time and rest before we go somewhere stimulating. When we return from events, we often have a half-hour of room time to allow everyone to settle again.
Be patient
Most of all we try to be patient. They are not trying to be naughtier than usual. They are overstimulated and can’t find their calm. We need to help them and not disapprove of the way they are made.
______________________________________________________________________
Found a good template/ sample of a letter to send to friends and families for when you are visiting,to help prepare everyone ahead of time, and let them know what you and the family need for a successful visit. you can edit it to tailor to your son or daughters needs and likes, it has some great points in it. I can't attach it here on the blog, but can email it to you if you want to have a look. Email me at : familysupport@peiacl.org, and I will send it to you in pdf or word document so you can edit it to suit your families needs. 





Wednesday, November 18, 2015

Holiday Planner: 6 Weeks of Tips for Helping Your Child With Sensory Processing Issues

There’s a lot going on during the holidays—including many things that can be tough for kids with sensory processing issues. Working on your child’s challenges is important, of course. But so is making the season bright for everyone.
This six-week planner offers daily tips and strategies to help you and your child work around some trouble spots and maximize the joy of the holidays.

Download the calendar here at this link: use it for a template, that you can tailor to your families needs. It's a great spot to go from, that make help you plan out a schedule. 
________________________________________________
There are some really great tips in this Holiday Planner, that helps to organize the next 6 weeks. There are some American holidays in there too, so we can give 'Thanks' yet again. The season is fast approaching, and I know it's alive and well in our house, so we are putting into place supports, schedules, visuals,  that will make the upcoming transitions, unexpected & expected guests, get-together's, outings, lights, loudness & general mayhem that comes with the holidays be as manageable as we can make it. For the next month and a half we will be devoting the blog to tips, strategies, ideas that will help get us all, as well as our kids through the time. Deep breath. Enjoy and make the season work for you and those you hold dear. That's what it is all about. 

Thursday, November 12, 2015

Sensory gift ideas for the holidays

I am sure, if your house is like mine, you are looking for that 'duel purpose' gift that will address a number of needs.Found this great site, and by the looks of it, the author is adding new items frequently. Certainly worth looking at, some great sensory feedback toys that will address a  number of issues, and most importantly be FUN!! The bands look totally awesome!! There is a great selection, that would cover many needs. Clothes, toys, larger manipulatives, sensory fidget toys, gross motor, fine motor, chew beads, weighted toys and blankets, games, cocoons,bean bag seats..oh the list goes on....

Please check out the link. Each picture has a write up and a link to be able to order, there are a few that I see are not available in Canada, but there are many other choices. Hope it gives you a few ideas.




Here's the link!! have fun looking through and shopping!! 
http://www.sensoryprocessingdisorderparentsupport.com/sensory-christmas.php

Wednesday, November 4, 2015

National Down Syndrome Awareness Week- November 1-7: Let's Celebrate


As this week is national Down Syndrome Awareness Week, thought I would share some links to the Canadian Down Syndrome Society Webpage,http://cdss.ca/ndsaw/
The Canadian Down Syndrome Society is proud to announce National Down Syndrome Awareness Week (NDSAW), November 1-7, 2015.
NDSAW is a public awareness campaign focusing on the unique strengths and abilities of people with Down syndrome. By doing so, we work to ensure equitable opportunities for all Canadians with Down syndrome.

Why do we celebrate NDSAW?

Public awareness occurs year round through efforts made by the CDSS and local groups. There are many Canadians from many walks of life who benefit from understanding the value of inclusive communities. A special awareness week creates an opportunity for everyone to make a concentrated effort to celebrate the contributions of people with Down syndrome to society.

Declaration of National Down Syndrome Awareness Week

Canadian National Down Syndrome Awareness Week is an annual observance sponsored by the Canadian Down Syndrome Society, November 1-7
At this time we take the opportunity to highlight the unique strengths and abilities of fellow Canadians with Down syndrome
Now is the time to demonstrate to each other and the rest of the world that Canada is a nation of people committed to a Canada where ALL are welcome, we embrace diversity and we value everyone’s genes equally
About one person in 800 is born with Down syndrome. Each one is a person first and a person with Down syndrome second
Down syndrome presents challenges for a child, their parents, their family and professionals in the fields of health, education and social science. It is vital that these challenges be met to ensure equitable opportunities for individuals with Down syndrome
As Canadians, we celebrate our similarities, as well as our differences, knowing we are richer as a result!
Check out the web link for more information. http://cdss.ca/ndsaw/








__________________________________________________________________________

Also wanted to share Jaxson's story, He has two great Moms : who have a blog and they explained it like this: 

My name is Holly, and along with my wife Alex, are mommas to a beautiful baby named Jaxson. Jaxson made us mommies overnight and has thrown us, head first, into the world of parenting, Down Syndrome and adoption. This is our blog about our randomly, beautiful life together.


Check out their adventures at the blog, there is also some great stories, and they talk about Jax's issues with sleep apnea in the October 24th post, that I am sure could be helpful to some. 

http://downwithjax.com/

_____________________________________________________________________________


Thanks to the Utah Down Syndrome Foundation, for creating this video called: "Down syndrome 101", an easy-to-follow video explaining the basics of Down syndrome. This educational video is perfect for new and expectant parents, and also great for use in school classrooms. Please check it out, and share.


________________________________________________________________________________
This is another great video!! we are more alike than different!! Check it out! What do you want to be when you grow up?